And it starts. Again.

So I completely lost it tonight.  I wasn’t expecting it and I didn’t think it would happen.  Why should it?  Its not something I haven’t been through before.  I promised myself that I would not cry when I started to lose my hair again but the tears came anyway.

It happened at home after the most perfect night out with my husband and family.  We ate dinner out on the water in the most beautiful weather and walked downtown enjoying live music.  I held hands with my husband and laughed and laughed with my family.  Meanwhile, in the most windy city on this earth, my hair was literally blowing away off my head.  Nobody could see it but I knew it was happening and I managed to put it aside all night.  At home, I went into the bathroom to stand next to the trashcan and began to run my fingers through my hair.

It’s astounding how much hair I was throwing into the trashcan.  Clump after clump.  Little bald spots here and there taunting me about the inevitable.  “You’re gonna be baaa-aaald, na na na na naaaaaah!”  I’d gone into the bathroom with the plan of ‘helping’ my scalp shed any loose hairs in an effort to avoid hair all over my pillow in the morning.  Instead I emerged from the bathroom with what had to be the most sourpuss look on my face because my husband took one look at me and wrapped his arms around me.

As he first hugged me, I thought to myself, ‘What is he doing?  I’m perfectly fine.’  As he kept me in his embrace those feelings melted away and gave way to how I really felt.  My face got hot and I kept telling myself to grow up and not be such a baby.  ‘Its JUST hair!’  Over and over.  My eyes welled up and I fought the tears but they came anyway.  They came like a flash flood, both unexpected and unwanted.

But it didn’t stop there, oh no.  As the tears flowed, the sobs joined in.  I began to sob like I hadn’t done so since I was diagnosed almost a year ago.  It was almost a sob of mourning.  In fact, it was. While I’ve learned and gained much on this journey, there are also things I’ve lost that I can never get back.  I’m not only mourning my hair but I’m mourning what it represents.  My husband asked me what I was feeling as I sobbed and I told him I felt tired, I felt afraid, and I felt angry.

I am mentally, physically, and emotionally tired.  My brain feels fried, my body has been run ragged, and my heart has scar tissue from multiple heartbreaks.  Just as I’m losing my hair, I’m losing things I’ll never get back.  I’ll recover but I know I’ll never truly be the same emotionally.  I’ve permanently lost that innocence, that naiveté that comes with never having had to go through something like this.  Unaffected simplicity is gone.  I’m afraid of what I have to do next to live.  I used to think I was fearless and now fear is a constant struggle.  Chemotherapy, nupogen injections, stem cell transplant; its all so overwhelmingly frightening.  Most of all, I’m angry.  I told my husband it would have been better for my hair not to have grown back in between treatments. Its hard enough to see your hair fall out once, but TWICE?  Give me a flipping break!  This is so unfair.

Its difficult for some to understand why its such a big deal when a cancer fighter loses their hair. After all, its just hair right?  Wrong.  While my hair grew back and as I gained weight, I was told time and again how healthy I looked.  Some said they couldn’t tell anything was wrong with me. That’s just it.  I’ve been able to lead a fairly normal life over the past couple of months because I have hair again.  Nobody gawked.  Nobody noticed me.  I was just another person at the mall or on the street.  A bald head is a big red flag that says, ‘Hey everybody, I have cancer!”

I’m in mourning for that ‘normal’ that I’m so quickly losing my grasp on again.  AGAIN.  Hair loss is the first outwardly physical confirmation of ‘I have cancer.’  Losing my hair makes me think of that every time I look in the mirror.  Its a symbol of what I’ve gone through and of what is yet to come. And that is HARD.  That is one jagged, little pill.

My husband held me in his tight embrace, wiping my tears until they stopped and telling me he loved me, hair or no hair.  I think sometimes he knows me better than I know myself and yet he hasn’t run away screaming in the other direction.  In an act of solidarity, he shaved his head bald before mine has had a chance to fall out.  Tonight as I go to sleep waiting for my hair to leave me again, I know I am loved.  “Buh-bye hair!  Na na na na naaaah, he still loves me!”

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7 thoughts on “And it starts. Again.

  1. Lynn says:

    I love you! You are normal to me. I can ignore you next time I see you on the street if that helps 😉

    You are an exceptional writer. I can completely feel the power of your emotions each time you write. A teacher, singer, dancer, writer quadruple threat. Measly cancer doesn’t stand a chance

  2. Rey says:

    Man girl, you had me crying by the end of your entry. Cristina, I’m simply at a loss for words. I wish there was something I could do and I feel powerless knowing there is nothing I can do. The one thing I know I can do…pray. Power in prayer. Love you both, girl.

  3. Karen Whelan says:

    As I read this, tears came to my eyes for you, Sweet Girl! I know you must be struggling but please know that you have such a lovely spirit and we are praying for you to get thru this! This too shall pass and you can do this!

  4. sylvia says:

    you are loved and it is understandable for you to mourn, know that you have always inspired me ever since I first saw you dance folkorico at Miller with my daughter Mari, you always have your beautiful smile and I could tell from afar that you love life. Please take care of yourself God is great and will continue to take care of you.

  5. Aida Castillo says:

    You had me crying. I wish there was something I could do to make it all better. I will continue to pray that god gives u strength and comforts you. You are beautiful both inside and out and a great inspiration to many!!! Keep fighting 😉

  6. Deb Yaeger says:

    So sorry girl! My heart cries with you and my tears fall. Give yourself a big hug from me or better yet have your hubby give it for me! God love him! Ill pray for our Lord to help you overcome your fears by filling your mind with positive thoughts and peace as you travel this journey. Its OK to cry as much as needed. Its a good release! I LOVE YOU! Deb

  7. Blanca Flores says:

    The Lord never gives you anything that you cannot handle, nor overcome. The strongest women I know have had to struggle with the hardest circumstances and trials. BUT YOU WILL PREVAIL, and you will be even stronger because of it. You are an amazing woman. I have learned more about you from this FB account than I ever was able to know of in high school. I admire your strength, your
    determination, and positive attitude through it all. The tears make you human, it is healthy to cry. You are an inspiration to many. Thank you for sharing your story and journey with us all. In our prayers always, Blanca Flores

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